
2009 Conference Information
Please plan to join us at the only national camping conference dedicated to summer camps that serve children of the bleeding disorders community. It’s called NACCHO! (pronounced nacho, like the chip and cheese snack)
What is NACCHO?
With funding by a grant from Wyeth Pharmaceuticals, the Arizona Hemophilia Association is able to organize a specialized annual weekend conference in the sunny southwest that focuses on the work of bleeding disorder summer camps. Designed by a planning team from across the country, NACCHO is facilitated by nationally known presenters and leaders from the bleeding disorder community who share useful camp resources and techniques. Participants can exchange resource materials, meet with representatives from the NHF, pick up new ideas, and share their most successful endeavors with people from other camps. Along the way, we have a little fun, good food, and strengthen the bond we’ve enjoyed as collaborators over the years.
Who Is Invited?
NACCHO was created for the people who are responsible for planning, organizing, and operating bleeding disorder summer camps (including family camps). These people could include your best counselors, camp director, medical staff, fundraisers, activities leaders, or camp committee members. The sponsoring agency that operates your local bleeding disorder summer camp, whether that is an HTC, NHF Chapter, or Association, should identify and designate representatives to the conference. Sponsoring agencies are strongly encouraged to send representatives who have never attended NACCHO before -- encouraging new participants to attend will help enlarge the base of caring and knowledgeable camp staff. The conference is funded to accept a limited number of participants on a first-come first-served basis with new attendees receiving special priority. Participants are encouraged to complete the online registration form with credit card payment for prompt service. Due to the enthusiastic response from the community to attend NACCHO, the following criteria for conference participation was devised:
* Organizations who want to start a camp may send 2 representatives.
* Organizations who have a program and serve 49 or fewer campers may send two representatives.
* Organizations who have a program and serve 50 or more campers may send three representatives.
CAMP DIRECTOR PRE-CONFERENCE AT NACCHO!
What is the Pre-Conference for camp directors all about?
Bleeding Disorder camp directors are invited to attend a special Camp Director’s Pre-Conference starting the afternoon of February 4, 2010 and continuing through the afternoon of February 5, 2010. The pre-conference is being held for camp directors to focus on ‘best practices’, staff training and camp management particularly relevant to the funding, administration, and supervision aspects of running a summer camp for those affected by bleeding disorders. Attending the pre-conference adds $25 to the registration fee and that defrays the cost of the extra night’s hotel stay, all meals, and all program materials. Camp directors are highly encouraged to attend and participate in the pre-conference.
What does NACCHO cost to attend?
Wyeth’s funding of NACCHO enables us to offer airfare, hotel, food, and conference registration for only $100.00 per participant ($125.00 if you are a camp director attending the pre-conference). Yes, it’s true! For $100 you get to spend two nights at the Tempe Mission Palms Hotel on Mill Avenue (downtown Tempe), and have all meals and receptions on the conference agenda included. The hotel, which is only a ten-minute drive from the airport, offers free shuttle service every half-hour. If you choose to take a cab or rent a car, that will be your out-of-pocket expense. Also, there is no reimbursement for any meals you have while you are traveling to and from the conference.
How do I make my airline reservations?
Once we have received your registration and payment, you will get a confirmation with contact information for making travel arrangements. Travel will be booked based on least expensive roundtrip fare from your city to Phoenix. There is no mechanism available for you to take a more expensive flight, or to be reimbursed if you need to make alternative arrangements. Every effort will be made to accommodate you on the airline and schedule of your choice within our budget. Once we have processed your registration form and payment, we will book your flight and provide you with a confirmation (e-ticket). Every effort will be made to accommodate you on the airline and schedule of your choice, but the least expensive ticket is the one we’re purchasing. The conference begins at 2:00 pm MT on February 4th and concludes February 7th, around noon so please plan accordingly. Please keep in mind that you will be responsible for any fees accrued for modifying your reservations. THE REGISTRATION DEADLINE FOR FREE AIRFARE IS December 31.
How do I make my hotel reservations?
Once we receive your registration form and paid conference fee, we will make your hotel reservations for Friday, February 5th, and Saturday, February 6th. Pre-conference attendees will have an additional night stay reserved on Thursday, February 4th. Check out for everyone is noon on Sunday. We will provide you with a confirmation of your conference registration and hotel room. If you are willing to share a room, please indicate that on your registration form. If you would like to extend your stay, it is your responsibility to contact and make arrangements directly with Tempe Mission Palms for those days and you will be responsible for any additional charges. Thank you for your cooperation.
Who is the sponsor?
For over two decades, Wyeth has been a leader in the creation of recombinant products for people with hemophilia, and introduced the first commercially available recombinant factor VIII and factor IX products. Wyeth produces recombinant hemophilia products exclusively, and currently markets ReFacto Antihemophilic Factor (Recombinant) for the treatment of hemophilia A and BeneFIX Coagulation Factor IX (Recombinant) for the treatment of hemophilia B.
Wyeth also offers educational programs and assistance for people with hemophilia and their families. As part of its strong focus on research and community, the company supports many hemophilia research projects, scientific meetings and patient advocacy organizations.
Can we send more people to NACCHO than we are allotted?
If a sponsoring agency is willing to pay airfare, share its allocation of rooms, and pay a conference registration fee of $350 (not $100), we can accommodate extra people. For the price of airfare and $350, this is still a great investment in your camp leadership. To register additional people, contact Alexis Christensen at alexis@hemophiliaz.org.